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Thank you all for thinking and praying for our family. Maddie is still in the hospital. Not because of her metabolic disorder, at least according to her doctor. First, Maddie came down with RSV, which is a very serious respiratory viral "cold". So she ended up back on the ventilator. Then, she...
She was running a low temp again last night, but Tylenol was able to bring it
down.
She is moving her arms a lot more. She almost pulled her feeding tube out.
Yesterday, when Andy was playing guitar and Linda was singing, Maddie would
open her eyes partially for 10 seconds, close them for a...
I ended up going back to the doctor, I have a sinus infection. They did put me on antibiotics. So hopefully I will start recovering soon.
The neurologist feels that Maddie has been in a coma since Monday.
Maddie is starting to move a little more, she actually put her arm over her
head...
No we are not on antibiotics. The doctors explained to me that while the antibiotics would keep us from getting strep, it would not keep us from getting a secondary viral infection. Which is what I am thinking we have. I have no sore throat just a fever, a stuffy nose, and a cough. Aches and...
No Phyl, I started with a fever and chills last night, and Doug is not feeling well today. We need to recover super quickly because Linda will have to go to work for at least a few days next week, and I need to go down and watch Maddie. So, I am pumping myself with all kinds of vitamins and...
Andy called and told me that Maddie had a minor seizure last night on one side of her body. They gave her an injection which was able to stop the seizure. The doctors feel there is some kind of neurological damage, though they do say that infants brains reproduce brain cells so quickly that it...
Peter,
Absolutely, the more prayers ascending to the throne of grace, the better.
First of all, thank you everyone for your prayers, they are the only thing holding us together right now. I just got back a little while ago from cleaning Andy's house. Since, I am not allowed down at the...
When it rains, it pours. I spent today at the doctor with Jeff, who has come down with a serious case of strep. Which for all intensive purposes quarintines our family from seeing Maddie/helping Andy and Linda. AAAGGGHHHH!!!! I am so frustrated right now. While Jeff won't be contagious after...
Maddie was not eating so they put a temporary feeding tube down her nose.
They will be feeding Linda's milk to her. 3 oz. every 3 hours.
They took another round of blood at 8 o'clock, every 6 hours around the
clock. They will be doing new genetics testing with this blood to see if
Maddie has...
Maddie, who was discharged yesterday and seemed to be her happy normal self, though not 100%, was very lethargic and not as responsive as she should be this morning. So Andy and Linda are on their way back to the hospital (St Peters) now to have her re-evaluated. Please think of Andy, Linda and...
Thank you all again for your thoughts and prayers. Maddie got home from the hospital tonight, and the poor baby smiled when they laid her down in her own crib.
What a nightmare experience. One thing this experience has definitely shown them is that they need to switch doctors.
BTW, the UTI...
Thank you for your support. Andy called with an update. They are surmising right now (waiting for the final test results), that she has a UTI and this caused her to not eat well yesterday, (or to need more to eat than she did). So, this morning her body didn't have enough energy and started...
Please say a prayer for Maddie tonight. She was totally fine yesterday, and this morning was very lethargic and non-responsive. After bloodwork the doctors say she is fighting some kind of infection, and it put her into a crisis mode. She is at the hospital on IV's. If she will start eating...
Re: Here's my 120
Bax, how exciting!! The tank will look great in your office.
Thanks for giving the dimensions on things. They always look a lot smaller in pictures. But, those pieces of rock are huge.